A First-of-Its-Kind Resource for South Carolina Families
Rise SC is a statewide resource hub designed to make it easier for families, caregivers, and providers to find support for sickle cell disease in South Carolina. We bring trusted information from hospitals, nonprofits, and public-health partners into one easy-to-use space — helping people spend less time searching and more time living well.
This site connects you to:
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Clinics and hospitals providing sickle cell care.
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Community and nonprofit organizations offering local support.
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Mental-health and wellness resources for families and caregivers.
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School and youth tools for students and teachers.
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Everyday care guides for hydration, pain tracking, and transition to adulthood.
Sickle Cell Resource Hub
Register for the South Carolina Sickle Cell Disease Registry
The SC Sickle Cell Disease Registry helps improve care, track outcomes, and strengthen advocacy for individuals and families affected by sickle cell. By registering, you’re helping providers and policymakers better understand the needs of our community — leading to stronger programs, resources, and support.
Why It Matters:
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Improves statewide data on sickle cell
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Helps clinics and hospitals plan better services
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Supports funding, awareness, and advocacy
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Connects families to trusted programs and updates
4,000+ South Carolinians living with SCD
That might seem like just a number—but each figure represents a person coping with a serious, lifelong condition. With over 27% living in rural areas, this state faces unique healthcare gaps. And despite universal newborn screening since the 1980s, access to care remains inconsistent, especially for adults transitioning from pediatric to adult treatment.
Are You a Health or Community Organization?
Rise SC is building South Carolina’s first centralized hub for sickle cell and chronic-disease support.
If your organization serves patients, families, or caregivers, complete this quick form to be featured in the statewide directory.
There’s no cost — just visibility, connection, and collaboration.
