Stay up to date on evidence-based approaches for prevention, pain management, and long-term care.

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Core Resources:

• NIH Guidelines for Sickle Cell Disease — View Guidelines 

• ASH Pocket Guides for adult and pediatric management

• CDC Treatment Recommendations on infection prevention, hydroxyurea use, and pain crisis care

• Emergency Department Best Practices Toolkit (coming soon through Rise SC)

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Tip: Bookmark this section for quick access to clinical tools and referral pathways.

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Smooth transitions reduce hospitalizations and increase patient confidence.

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Helpful Tools:

• Transition Readiness Toolkit

• Health Care Transition Quiz (ages 14–21)

• Directory of Adult Hematology & Primary Care Partners

• Conversation Prompts for Building Patient Independence (Coming soon) 

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Tip: Encourage teens to take ownership by tracking medications, scheduling appointments, and keeping a “Health Passport.

Sickle cell care works best when medical and community teams collaborate.

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Referral & Partnership Support:

• Connect with South Carolina’s regional SCD foundations (Barksdale, COBRA, Orangeburg, and others) See Nonprofit Directory HERE

• Refer patients to mental health and family support programs through See Mental Health Resources HERE 

• Share data and case studies through Rise SC’s provider network to identify care gaps (Coming Soon) 

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Want to feature your clinic? Fill out the resource form below to be added to the statewide directory.

Resource Form Link 

• Inputs: Digital hub, SMS platform, plain-language tools, partnerships, social media campaigns

• Activities: Resource curation, closed-loop referrals, SMS reminders/mini-lessons, amplify peer groups, collect family feedback.

• Outputs: Families enrolled in SMS, hub usage (downloads/page views), referrals completed, stories shared, clinicians using tools.

• Outcomes: Improved family knowledge, stronger care coordination, better transitions, reduced ER utilization, expanded reach of foundations.

Practical aids for clinic and community use:

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• Printable Pain Crisis Action Plan template

• Medication Tracker for patient self-use

• Sickle Cell Fact Sheet for school nurses 

• Family Education Flyer 

(Downloadable templates launching Winter 2025)